tag:blogger.com,1999:blog-8751122243441606595.post5215130225543694381..comments2022-12-10T07:11:01.820-08:00Comments on Chips, Cheese & Sometimes Marshmallows: Guest Post-Julianne!Season Atwaterhttp://www.blogger.com/profile/14272614584793913445noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8751122243441606595.post-6525031532790543382013-07-09T03:40:37.882-07:002013-07-09T03:40:37.882-07:00Jullianne, Thank you for sharing your story. You ...Jullianne, Thank you for sharing your story. You are an inspiration and a truly fabulous mom! Your little angel is so lucky to have such a nourishing and loving environment, with you at her side she is sure to reach the stars! My name is Kristi, I'm 29 years old and I live in Michigan. My son Isaac is 14 months old (his sister is 2.5, Lydia). At 8 months we received the 2q23.1 microdeletion dx and it was not until 1 year that I realized, "I have a son with special needs." My journey with Isaac is just beginning. It would be fabulous if you would join us on facebook; your input would be greatly appreciated by all. Also, it's nice to vent to someone who can lend a truly understanding ear. When I talk to "outsiders" they don't fully understand and although their words of support are meant to be helpful sometimes I'm left feeling exasperated rather than relieved! This 2q family helped to carry me through my hardest times by offering support in real time with real understanding! God bless you and your family! <3 KristiJetblackroguehttps://www.blogger.com/profile/06134921547537306543noreply@blogger.comtag:blogger.com,1999:blog-8751122243441606595.post-225547742239089682013-07-08T16:13:28.175-07:002013-07-08T16:13:28.175-07:00Welcome! I totally understand your frustration and...Welcome! I totally understand your frustration and we all do!She sounds like an amazing girl with lots of potential! My daughter Kayla will be 12 on Wednesday the 10th and she is an amazing reader too but has comprehension problems like Julianne. I didn't even know she wasn't comprehending what she read until we moved from a small town where she had gone to school her whole life, this was last year and they had given her a test and found out, I was shocked. Kayla wasn't diagnosed until 2009 when the test had just come out, she was 8yrs old and we knew there was something going on but couldn't get any answers. I was very alone when she was diagnosed because we were told that 15 other children had it. I hope we can help you feel better byt talking and sharing things :)Anonymoushttps://www.blogger.com/profile/04112210913357557038noreply@blogger.comtag:blogger.com,1999:blog-8751122243441606595.post-41812112211196575662013-07-08T13:26:03.916-07:002013-07-08T13:26:03.916-07:00Thank-you for sharing your story. Your story is so...Thank-you for sharing your story. Your story is so similar to the rest of us. Please join our family support group on facebook. Anonymoushttps://www.blogger.com/profile/03132649694347823551noreply@blogger.comtag:blogger.com,1999:blog-8751122243441606595.post-69256184301807446272013-07-08T12:17:56.950-07:002013-07-08T12:17:56.950-07:00Welcome Julianne & family! My son Owen is ano...Welcome Julianne & family! My son Owen is another 2q kiddo, with slightly different challenges, many the same. It sounds like you are a wonderful Mom to Julianne, full of love and patience. Keep up the good work with here, it sounds like it is really paying off! Thanks for sharing your story!Anonymoushttps://www.blogger.com/profile/12167842424692916339noreply@blogger.com