Pajama Day

At the end of the school year Asia gets to do a lot of fun activities. A couple of days ago her class all went to a "trampoline park" where they get to jump in foam pits etc. I wish I could have watched these kids because I can picture Asia not wanting to do it but she came home exhausted! She must have gotten a work out she went to bed at 7pm and I had to wake her for school the next day at 7am. Yesterday they had rocket day and today was pajama day. Asia did NOT like me putting on pajamas to go to school this morning! I don't think she understood what was going on. She kept saying "No No, bus" and trying to take them off. I actually thought it was kind of funny and pictured her as a "normal" little 7yr old girl saying "no, I cant wear my pajama's to school!! No one else will be in their pajama's". I tried to explain it the best I could and when she got home I asked her if all her friends had their Jammie's on too?? She seemed all right:) She is out of school next week-starts a summer program in June.

-Asia has been a little feisty the last few days. I am wondering if it is because she is so worn out or if something else is going on. In the morning and evening she has been slapping in the face, screaming at meals, and kicking when she needs to be changed....again, nothing like she was-not as aggressive and full of rage but man, it sure pushes me over the edge. I am in need of a "break". I'll have to watch her for a few days and see if anything is bothering her. On the other hand...she actually came in to her brother's room and pleasantly tried to play  blocks with us-that was cool because it's out of the ordinary:)

Race Day

This weekend we created "Asia's Team" to help benefit children with disabilities and ran/walked the 1mile fun run. We had a really great time-Asia had a ton of family support along with a few "spirit runners" and we were able to help raise a little bit for charity. The weather was a little cold but didn't start to rain until the race was finished. I did run Asia and her baby brother and it was harder then I thought it would be to push them:) Good experience though and I will know what to expect next year-we plan on doing it again. The kids had a great time. Asia & baby didn't make a peep the whole mile until we passed a McDonalds-ahhhh! Then that is all she could think about and it made her a little grumpy when we were finished. Asia got a third in her age group:) and I am pretty sure she really enjoyed the run. Thanks to Grammy, aunts, uncles and all of her cousins that ran with her.

 Race Packets...

 First in line...

 Big Sister...

 Medals...

Constipation Treatments

Many of you have asked what we are using to help treat Asia's constipation. I was telling my husband that it is crazy how many people are suffering with constipation and it seems like it is only getting worse. I am going to share what we use for Asia- along with what friends are using for their children and any other helpful tips I have acquired. I am listing everything because everyone is unique. What works for one may not work for another. Often a combination of things are the key. Remember to make sure nothing will interfere with any current medications or conditions. You can research all of this a little more-I want to list it briefly. If you have any additional questions you can always email me. I am also listing "natural" treatments vs. a prescribed medication. My goal is to find something natural that works and keeps working. Maybe it will give you some good ideas.

-Probiotics (buy them at your local health food store, usually in the fridge)
-Lots and lots of water:)
-Apple, pear & prune juice
-1 Tbsp dark Karo Syrup in 2 ounces of warm water
-1 Tbsp of coconut or pure olive oil
-1Tbsp black strap molasses
-Additional Fiber: High-fiber foods include cooked dried beans or peas (legumes), apricots, prunes, peaches, pears, plums, figs, spinach, broccoli, or cauliflower. Raw and unpeeled are best.
-Herbs that may help would be Oregon Grape & Dandelion Root
-Dr. Christophers Kid-e-Reg  (bowel tonic-health food store)
-Fresh fruit smoothies (uncooked spinach and fruit)
-Abdominal massage. (see link below for process) You can also have your child lie on his or her back, legs flexed onto his or her belly, and rotate his or her legs in a clockwise direction-may ease some discomfort.
-Acupressure points & Reflexology
-Essential oils that can help with constipation: Black pepper, rosemary, basil, lemon, peppermint, marjoram, Digest Zen, ginger, fennel, orange, rose, sandalwood and more.
-Increase whole-grain foods, such as bran flakes, bran muffins, graham crackers, oatmeal, brown rice, and whole wheat bread. Offer your child whole wheat bread instead of white bread.
-Avoid too much dairy. Dairy can cause constipation.
-These foods can also cause constipation: whole cow's milk, bananas, cheese, cooked carrots, and other foods that are high in fat.
-Honey or Honey & Lemon Juice
-Fruit-Eze: This is a healthy spread that consists of Prunes, Raisins and Dates. Friends say that it works great and tastes good.  Put it on Toast, waffles, in juice etc.   Link:   http://fruiteze.com/

~When Asia was little and we could get her to eat what we wanted:) Diet did not do the trick to treat her constipation. That is when we resorted to Miralax. She is a super picky eater right now and we can hardly even get her to eat or drink sometimes. To keep her off of Miralax, this is what we are currently doing. Not sure yet which of these steps is the key but it's working. I do see a dramatic difference when she will drink lots of water.~

-Total Digestive Enzymes: This was a recommendation from a friend and it really seems to be working great. She has been taking it for awhile now and I have tried different dosages. Right now
I give her two tablets a day and it's a combination of probiotics and herbs.  Here is the link:  http://divinenature.com/enzymes/total-digestive-enzymes/item/total-digestive-enzymes

-If Asia's stool gets dry or hard I give her 1 Tbsp of the pure olive oil once a day in her drink and usually after one or two days she is soft again.

-Asia gets medication twice a day mixed with yogurt or applesauce. I usually alternate the two and when she gets applesauce I do mix in honey-not too sweet and no exact amount:) Honey is a natural laxative-it stimulates the bowels.

-Reflexology: I massage her feet- I want a chart to put on Asia's wall...right now before bed I massage essential oils into her feet focusing on the colon & intestine areas.

 There are also good points on the hands.

This is all I am doing right now! Something is working so I am sticking with it until I have to try something else.


~This is a great link for Essential oils for constipation, acupressure points, 7 step abdominal massage and diet.~  
http://radiantrestful.blogspot.ca/2012/12/constipation-techniques-and-essential.html

Disability Parking

Lately, I have been struggling getting Asia in and out of the car and carrying her long distances to get to where we are going-whether it be school, stores, Dr. appointments etc. She is getting so big!! I swear she has grown so much this year-yay! It doesn't help that I am so short and I just can't handle her height:) I use a stroller when I can but, she is also getting to big for the ones I have. I never in my whole life thought that I would request a disabled parking tag but, I did. I didn't even know that I could and that is why I am sharing this. I feel a little guilty because I know there are people who need those parking stalls way more then I do but, I struggle with Asia's hypotonia (muscle weakness) she always wants to be carried and I cant do it anymore. Dad can do that easily-I cant:) Asia has a lot of medical conditions but the Dr. said because she has epilepsy she definitely qualified. My intent is to just use the stalls when needed and I have only used it once-it was when I was alone and she had to go to a Dr.'s appointment. I have to say that is gave me a sigh of relief when I realized I didn't have to carry her through the parking lot. It was so nice. It was then that I realized that she really does have a disability (that could be indefinite) and I shouldn't feel bad because of my parking placard. I am getting a new license plate but I can not get it until my yearly registration is up.

What I did is I talked to Asia's pediatrician first about qualifying then I downloaded the application form-here's a link
http://tax.utah.gov/forms/current/tc-842.pdf 
I filled out my portion then dropped it off to Asia's pediatrician to sign. I brought that in to the DMV and they gave me the temporary Placard to hang inside until I can get my new plate. This is a sample of a Placard-I received two (for our two cars) then I will return one when I get the plate.

The license plate will just have a disable picture on it and I wont have to worry about the placard. This will probably be so worth it the older she gets.

 

~Asia is still doing so well-I love that I have a "mostly" happy girl in the morning when I get her up-she teases and laughs until I can not figure out what she wants to bring on the bus-then she gets mad:)

 

~She has been biting her arm....argh. Today she came home with this on her arm and I am guessing it was put there to try and stop it?? Good idea.

 

~I have to say I still have not noticed any recent seizures, I am dying- I can not express how happy I am! I think it's a combo of updated medication dosage a few months ago and no Miralax...If this keeps up maybe she will be able to retain information and start progressing more. We haven't seen a lot of progression this year:(

 

~Someone at school knows Asia and knows she loves Elmo-she brought this home today, so cute!

~We have our Now I Can benefit Walk/Run this Saturday. It's to raise funds to help children with disabilities and you can register all the way up until the race. I will be pushing Asia and I have got the whole family doing the 1mile, along with a ton of extended family-we should be having a lot of fun. Go Asia's Team! Will post pics.

 

~We have started learning a bunch of new signs at speech therapy. Asia did really well yesterday, I think it will be good.

 

~Asia is such a stinker-she was laughing hysterically while I was driving today and I didn't have any idea why until I went to get her out of the car. She gave the baby a open bag of chips and she knew it was going to be trouble:) Look in the background of this pic...

~I have had so many ask what we are using for Asia's constipation...sorry. I will get all that posted next! She is doing fine, no big problems to report in that area-such a relief. That is something so hard to watch your children struggle with. I feel for you and completely understand your pain!

 

~Asia will be attending the extended school year program. Meaning-summer school. I am actually so glad. She needs it. She needs to have something to keep her going during the day and to help her retain some of the information she is learning.

Medical Tattooing?

Medical Tattooing?? I bet this would be a hot topic-Right off people are thinking "what? no way" but, think about Asia's situation and many others...

After hearing about the 3 women who were abducted 10yrs ago and just rescued today in Ohio! It stirs up a lot of questions. Can you even imagine...I pray to never be in any type of situation like this-my heart goes out to anyone who has and it only makes my concerns for Asia triple and I'll tell you why. It's not that I think she'll be abducted-but sadly you never know and you always have to be on guard. My concerns are even if she gets lost, runs down the street, etc. Asia doesn't talk, she can not communicate at all, especially if you haven't been around her much you would have no idea what she needs. I will always have hope that she will someday grow out of this. That she will even be able to talk but, until then what do you do? She has many medical concerns that have to be treated everyday. Asia is very mischievous and she thinks it's funny if she is in trouble. She loves to try and get away with stuff. When it comes to running off, she is out the door on her way to who knows where- as fast as her little legs can carry her. I think she must feel a sense of freedom when she can take off and just "go". You can watch it-Big smile on her face, wind blowing through her hair and walking on her toes as fast as she can:) Scary right?

There is a part of me that says "I shouldn't worry" about others?? and then there is the other part of me that freaks out at the thought that someone would harm her and I would never even be able to get her to tell me what has happened-Argh! One of my biggest frustrations and fears! Once and awhile she'll come home from school with a bruise or scratch and I am totally assuming she fell down (because she does) but she cant tell me. It breaks my heart! Sometimes I'll get a note from school saying she tripped or something like that and I really appreciate it. I have gone through about three bracelets that I have had made. Kind of a "ID tag" with her name and phone number engraved on it but, she keeps breaking them and they get really scratched up so the writing unreadable. She pulls and pulls until they snap. I have had them welded, used the strongest material I could find and she still breaks them. This I did after a situation at grandma's- which I hate to admit happened but, I was doing a photo shoot in the back yard (which is fenced in) and Dad was (I thought) watching her. I think he assumed I had her but neither of us realized the side gate was open. I can't even describe the feeling when a neighbor (which I didn't know because it wasn't my house) walked back and asked if anyone was missing a little girl. Instantly my heart sank and I was sick to my stomach. Turning left in direction, I walked down the street about a block and there she was playing in the yard with several people! Talk about feeling like a terrible parent!! We concluded that the dog barking must have caught her attention and she headed to check it out. This had to be the work of  her angels because if she would have turned right, she would have headed directly onto a very busy road. I say "Angel's" plural because the girl has got to have more then one:) She could not tell this person who she was or even where she came from.

There are a bunch of medical ID alerts in necklace form and bracelets but she will not keep them on. What do you do?? Seriously?  I know obviously you keep them in sight at all times but, what if a "grandmas house" situation occurs? or what if she is in someone else's care and something like this happens accidentally? So scary but realistic. I would love for her to be able to explore a little on her own and be at a small distance. She has a mind of her own and knows what she wants to do and where she wants to go. I just don't know if she knows enough on how to get back home and I have never seen any signs that she can perceive what "danger" is. She even has a really high pain threshold that often, if she does get hurt, I don't hear a peep out of her. This brought up the topic of medical tattoos?? I am curious to know what people think. I haven't seen anyone do it. Is it completely wrong? I guess there is the concern that she may not need something like that forever. Then I was thinking maybe there is a "henna stamp" I could have made or maybe I will just start writing with sharpie on her arm (which is more realistic, and I will most likely start doing it especially with large public events). She does chew on her arms though (which we try to stop but cant) so maybe henna and ink would wipe off? Implant computer location chips? How far do you go? Thoughts? Anyone have any other ideas?? I would love to hear them:)

Special Olympics

Asia attends a elementary school that is largely dedicated to the special needs children in the area. Which is really great- because the classrooms contain all that they need to help these children and they have activities catered towards them. I posted yesterday that Asia was going to have the "Special Olympics" at her elementary school today. She came home all smiles with a new t-shirt and a 1st place in "bowling" and a 2nd place in "running". They worked hard and competed while the other students in the school cheered them on. I know she had a lot of fun because when I asked her about it she would "jabber" on and on and on:) Love this!

 

Random Stuff

I am busiest in the Spring and Fall with my job so my posts are lacking but, I wanted to get down just a few things that have been happening...Asia has started additional Speech and PT appointments and I have been taking her out of school for that. Right now "life skills" are more imperative then other areas. She had a speech therapy evaluation and I think right now we are going to work on teaching a little bit in sign language. This should be a adventure for the whole family because we will all have to learn. She surprised me and I think her therapist, when he was showing her pictures to "say" and she busted out with a perfectly clear "Apple"-it was awesome to hear that! Asia wants to use her hands a lot so I think sign may be a good direction to take.

Physical therapy is going well and a lot of that has to do with that special bike they have. She has now added "bike" to her prayers at night:) When Asia says prayers at night it is really just a list of all the things she is "thankful" for- Bus, Elmo, Mall, Gma's house, McDonald's and now Bike-really cute.

A couple of years ago Asia had some "daffo's" ankle/foot braces made because we thought it would help with her balance and to support her ankles that seemed to be pronating. It didn't seem like they were doing much so the PT suggested we had them cut down-now they are just a sole insert and they seem great. We got her some new high tops that fit the insert and support her ankle. A lot of shoes have the option to remove the sole insert which makes a little bit more room for braces. I would never have thought to have them cut. They were so expensive to begin with but, I guess if we weren't using them anyway it doesn't matter.

The title of this blog-chips, cheese and sometimes marshmallows-use to describe her fav's in food but I have to say I have seen a change in that. Which is fine with me:) She doesn't eat cheese or chips very much and not really any desire for marshmallows even as a offered treat. She has been a very picky eater-which makes trying to figure out what is going to be best for her digestion really hard. I am trying to convert her to smoothies and applesauce (instead of her fav yogurt) but this has been really hard. I'll keep at it.

Sleepless nights and less napping are here again. I think Miralax put Asia into such a lethargy that she wanted to sleep all the time. Now that she has been off of it she is up at night again. Not every night and not all night but def a lot more often. Temporarily to get some sleep I will bring her her iPad and she will watch it for hours. This is something else I need to work on but I wouldn't trade this for "Lethargy":)

School is still great-still getting good notes from teachers and I am so pleased with that. In fact, tomorrow is "Special Olympics" day. I hate that Asia can not tell me what she does during the day at school:( I know they do so many great things there and I never know/hear about it-that's a bummer.

**I have had so many people tell me about their Miralax experiences and ask what we are using for Asia that I am going to post about that. It is honestly baffling how many people are struggling with digestive problems! There is def something wrong with our diets. I did receive a return phone call from Asia's pediatrician about the articles I forward to him concerning Miralax and this is what he told me. He actually had the hospital pharmacy along with himself searching for information regarding these side-effects and he didn't come up with much info. He did say -which I have as well- that everyone could have a different reaction to it. He suggested that I write a letter to the FDA regarding my experience with Asia and gave me a couple of ideas I could try with her. I think that writing a letter is a great idea and to all of you who have mentioned problems with your children and Miralax to do the same. Maybe some one will take note and do some testing:) I will let you know that a few of my conversations with others have included their children having seizures while on it-wow, scary. That is just not right.**

I Run

A couple of months ago I realized I needed at least a "little" time to myself, to get out of the house and collect my thoughts and emotions. I signed up for a gym and let me tell you it really helps deal with the daily stress. I bring my iPod with my fav songs and go to work out but, it is actually relaxing (compared to what awaits at home:). It gives me so much more patience with Asia. I am not consistent yet with getting to the gym but it is anywhere from 1-5 times a week and I run. I can not run a marathon but, even if it is only once a week it helps. I actually look forward to it.

After all of that....I posted awhile ago about a Charity run for the Now I Can foundation and I just signed up. It benefits children with disabilities. So far I have got my oldest daughter, Asia and myself running. I am starting a group under "Asia's Team" and we are going to start with the mile to see how Asia can handle it (and me:). There is a mile or a 5k.  I have a feeling she will love it and if she does we will try a longer distance another time. Hopefully I can handle pushing her:) If you want to sign up as part of her team she would love it! You will have to call to get the discount (801-228-1935). They will take a payment over the phone and send you a form. Or check out the info from the link below.  **Register by May 10th for the discounted price**

http://www.nowican.org/runtowalk

Miralax Awareness cont.

I just want to reply to the many messages I have received on my last post about Miralax. It is great. Whether it's good or bad it's getting people talking about it. My intent with that post was just to share "awareness" and caution. To get people talking and asking questions. Nothing is ever done until there is a "fuss". More people need to ask these questions and maybe some research will be done. My main concerns are not for the adults but, mostly for the children. Their growing/developing little bodies react differently to treatments then adults do. Anything given to them (children) should go through a complete testing-who would expect anything less. Especially when it is a substance given for long periods of time. When there are reports out there like these and Dr's are not aware of them I am concerned. I am obviously not in the medical field (even though I feel like I am:). My husband and I have spent countless hours researching medical solutions for Asia over the last 5 years. We have often found ourselves knowing as much or more then some of her Dr.'s-and I am not saying that "proudly" just sayin. We have been focused on one person when Dr's have hundreds of patients. They do their best with what they know and the rest is up to you. When you spend that much time looking at medical research and you come across information that directly affects your own child and you see the negative effects it has caused- I am going to share that information with others that may be searching for those solutions in their own life. The change in Asia is undeniable. Clint and I feel its our duty to share the outcome of our experience and give a "heads-up". Not everyone is going to react the same as Asia has but, everyone needs to be aware of whats going on.

My pediatrician recommended sending in a report to the FDA. Here is a link for FDA report and also report adverse effects to RXing. I have submitted my forms and if you have had problems you should do the same. Here are some links to report to:

This one is to complete a form 3500 online,
https://www.accessdata.fda.gov/scripts/medwatch/medwatch-online.htm
Download a copy of this Voluntary Reporting Form FDA 3500 or the Consumer Voluntary Reporting Form FDA 3500B and either mail it or fax it to us at 1-800-FDA-0178. Forms are available at:
http://www.fda.gov/Safety/MedWatch/HowToReport/DownloadForms/default.htm
Another great link to report at
https://www.rxisk.org/Default.aspx

There is also a Yahoo Miralax group-that has a lot of people who have additional info on Miralax awareness. Just search Yahoo groups Miralax and it comes up.

Side Notes:
~she is still doing awesome! no aggression, rage, lethargy etc.
~no noticeable seizures.
~throws a tantrum here and there when she is not getting what she wants but, tantrums do not include the aggression (hair pulling, kicking, hitting etc.)
~putting more words together
~renal ultrasound came back with normal results-yay!

Miralax WARNING

I am setting aside the cleaning and work right now to post this message. I feel like I received a huge blessing-this post will be a little lengthy but please read the end results:) Someone shared some information with me and I want to spread the word. This is VERY important because it affects so many children. I am almost sick that I did not have this info a few years ago!

Asia has suffered with constipation since she was little. I don't remember her having to many issues before she was 1yr old but, I remember it becoming a problem after that. Not sure why, it may be her low muscle tone or something directly related with the missing info from Chromosome 2. Asia along with other 2q kids have a hard time with potty training and severe constipation problems. We have tried everything-with diet, we tried taking her off of corn, dairy and gluten (didn't see any results). When Asia was small (up until a couple of years ago) she would eat ANYTHING:) At that time she definitely got her daily dose of vegetables and fruit. For constipation we would give her prune juice and additional fiber to try to get her to go and none of it worked. With Asia, it seems as though her constipation problems directly affected how frequent and severe her seizures were so we definitely wanted to get it under control.

We were soon introduced to Miralax. In fact, I remember sitting in a waiting room with a GI doctor and she told us her daughter had constipation issues and she just gave her a dose everyday and it kept her regular. We inquired with Asia's Dr and were given prescriptions to get her Miralax-even though you can buy it over the counter some insurance will cover the cost of it. I can not remember the exact date but it has been at least a few years since she started taking it-maybe longer. It worked great-we were so relieved to have something. If she missed a day she wouldn't go. Along with being miserable, she would have increased seizure activity so it was important she got it everyday. With in the last couple of years Asia's personality has changed. She is extremely aggressive, lethargic, terrible mood swings, her Autistic characteristics seemed to be amplified. You may have read from previous posts about her erratic behavior. At home on the weekends all she wants to do is lay in bed-took several naps a day, just miserable. I recall bringing her in to the Dr.'s office last year because she looked like death-so sick, no energy, limp, pale, lethargic, expecting there to be a ear infection or something and nope, couldn't find anything wrong. I sat there and said to her (Dr.) "look at her, somethings wrong".  I didn't know what to do. Then I got this report on Miralax-and all I can think right now is are you freakin kidding me!! I encourage you to read the full articles for all info-what it is actually made of and all the effects.  Here are just a couple excerpts and my main concerns:
 

In some situations, metabolic acidosis can be a mild, chronic condition; however, it may lead to shock or death in severe cases. Neuropsychiatric adverse events may include seizures, tremors, tics, headache, anxiety, lethargy, sedation, aggression, rages, obsessive-compulsive behaviors including repetitive chewing and sucking, paranoia and mood swings. (this is Asia, I've seen it all except the "tics" & not sure about the "tremors")

 

use in children and warning of potential adverse events associated with PEG 3350 laxative products. Adverse events reported in the FDA Adverse Event Reporting System include, but are not limited to: gastrointestinal, renal, urological, hematological, neurological, neuropsychiatric, dermatological, and at least 3 child fatalities.

Technically, PEG is an osmotic laxative. Because of this property, it blocks the absorption of nutrients in the small intestine. Its extended use may result in severe malnutrition-related disorders, particularly in young children and older adults. Autism is one such disorder. It may take only two weeks of an acute iron or iodine deficiency to cause autism in a child younger than two. (Asia has a  slight iron deficiency right now)

Safety and effectiveness [of PEG] in pediatric patients has not been established.”

Administration back in 1999 only for use by adults, and for no longer than 7 days. In spite of this clear and unambiguous rule, pediatricians routinely prescribe PEG-containing laxatives to children of all ages [8] anyway. Equally disturbing, many doctors encourage adults and children alike to take them indefinitely, even though the label clearly states: “Use no more than 7 days.”

“I’ve had kids on it daily for years,” said Dr. Scott W. Cohen, a pediatrician in Beverly Hills, Calif., adding that he will generally refer them to a specialist in prolonged cases. For children with chronic constipation who are not being helped by dietary changes, “We literally give it like water.”

The problem is-no one knows what this does to children. The research hasn't been done. When you  look at the Miralax label it does say "do not use more then 7 days"-for adults and kids over 17.  Children are being given adult doses of this product indefinitely. I brought this up with Asia's pediatrician and he had not heard anything. In fact, he tried to look it up on the web and couldn't find anything. I did send this info to him and I would be curious to see what he thinks. The following links are full of information-please read them. In the article on the first line it gives you links to many other articles.

http://www.gutsense.org/gutsense/the-role-of-miralax-laxative-in-autism-dementia-alzheimer.html#.UQZ0ySda1Ms.facebook

http://www.elsevierbi.com/~/media/Supporting%20Documents/The%20Tan%20Sheet/20/28/Polyethylene_glycol_citizen_petn_120603.pdf

http://www.nytimes.com/2012/05/26/us/miralax-a-popular-cure-but-never-approved-for-children.html?pagewanted=all&_r=3&

So-after all of that:) I never would have suspected Miralax to be the cause of so many of Asia's issues.  I took Asia off of Miralax almost two weeks ago...I am substituting for now with some digestive enzymes and they are currently doing the trick but, I don't know how long that will last. I hate the thought of having to deal with the pain of constipation again but, I will never give her Miralax again. It feels like I was poisoning her. I don't know how I can completely describe her change but, she is a COMPLETELY different person-and I am getting emotional right now even typing this. If I didn't see it I wouldn't believe it, night & day difference. Two days later I remember telling my husband in bewilderment-Asia just said this or just did this. She is herself again, she teases, she plays, she is bringing back words she used to say, she is eating better, she has more energy, she has a kindness again, a calmness and clarity. This happened with in 2 days-it was like a miracle. I have been holding back on this post because I didn't think it was actually happening. Don't get me wrong-she still has her tired and frustrated "tantrums"-but she doesn't have the rage and aggression that she did. I don't feel abused anymore:) Even when she is extremely frustrated she refrains from hitting and hair pulling like she was. She doesn't want to spend all day in bed! She gets up and makes a mess:) Gets in to stuff:)  Everyone has noticed a difference in her-even before I tell them this story. She has been getting notes from school saying-"She was so happy today!" Her teacher commented that "I got Asia to sit and concentrate on work today?!" and "She ate great".

I just wanted to do my share and "Spread the Word" because so many little ones are in the same situation and we really don't know the long/short term effects. Whats this product going to do to them in another 15yrs? It has never been approved by the FDA for pediatric use. Look at the labels because there are other brands made with the same ingredient -polyethylene glycol. I will be curious to see how this will effect her seizures and I hope that there is no permanent damage....