Rare Disease Day February 28, 2014
Here is a link for the US: http://rarediseaseday.us/
This event takes place on a global, national and local level. If there is nothing in your state take action now and tell your representatives that rare diseases are important to you. - See more at: http://rarediseaseday.us/#sthash.ivYDsApq.dpuf
There are national activities to participate in like Handprints Across America.
- See more at: http://rarediseaseday.us/#sthash.OuwM9mbA.dpuf
Local for myself is Salt Lake City, Utah. This year is the first year that SLC will be participating in Rare Disease Day. If your state is not yet participating contact your representatives!
Rare Disease Day US in Salt Lake City on , Utah State Capitol, Hall of Governors,
American MedChem Nonprofit Corporation (AMC) (http://americanmedchem.org; Twitter: @americanmedchem) joins the National Organization for Rare Disorders (NORD), http://rarediseaseday.
us/; Twitter: @rarediseases ) to observe Rare Diseases Day US in Salt Lake City.
When: , from
Where: The Utah State Capitol, Hall of Governors
Short talks are planned at the same venue from .
This is the first time that Rare Disease Day US is being officially observed in SLC. Governor Herbert has proclaimed as Rare
Disease Day in Utah.
Speakers (subject to change):
Steve Mikita, JD
Utah Assistant Attorney General
Robert Selliah, PhD
Founder/President of AMC
Joe Cramer, MD
Intermountain Primary Children’s Hospital
Mike Spigarelli, MD, PhD
Professor of Pediatrics, Internal Medicine and Pharmacy
University of Utah Health Sciences
All are invited to attend and show support to our local community of patients and families afflicted with rare diseases. Also, lend your help to make this event be a success by sharing this information (email, social media, word-of-mouth, etc) with your friends and families and with patients with rare diseases. AMC and NORD will have a table of exhibits and information to raise awareness about rare diseases.
Robert Selliah, Ph.D.,
Founder, President & CEO
American MedChem Nonprofit Corporation
Salt Lake City, UT, USA
DISCOVERING NEW MEDICINES TO TREAT KIDS