I got the news about Asia and her genetic disorder almost two weeks ago-that she missing information from her Chromosome 2. Her neurologist wanted to do a little research and call me back the following week. Being a rare disorder, I imagine he needed to research the disorder, look into treatments etc. which is great but, I am also waiting to tell family, teachers and others that take care of her until I get the rest of the information from him. She may be the way she is forever and I want to have all my info before I reveal what we have learned. I have left a message and it's been another two days. Patiently waiting, I will call again tomorrow!
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