Miralax Awareness cont.

I just want to reply to the many messages I have received on my last post about Miralax. It is great. Whether it's good or bad it's getting people talking about it. My intent with that post was just to share "awareness" and caution. To get people talking and asking questions. Nothing is ever done until there is a "fuss". More people need to ask these questions and maybe some research will be done. My main concerns are not for the adults but, mostly for the children. Their growing/developing little bodies react differently to treatments then adults do. Anything given to them (children) should go through a complete testing-who would expect anything less. Especially when it is a substance given for long periods of time. When there are reports out there like these and Dr's are not aware of them I am concerned. I am obviously not in the medical field (even though I feel like I am:). My husband and I have spent countless hours researching medical solutions for Asia over the last 5 years. We have often found ourselves knowing as much or more then some of her Dr.'s-and I am not saying that "proudly" just sayin. We have been focused on one person when Dr's have hundreds of patients. They do their best with what they know and the rest is up to you. When you spend that much time looking at medical research and you come across information that directly affects your own child and you see the negative effects it has caused- I am going to share that information with others that may be searching for those solutions in their own life. The change in Asia is undeniable. Clint and I feel its our duty to share the outcome of our experience and give a "heads-up". Not everyone is going to react the same as Asia has but, everyone needs to be aware of whats going on.

My pediatrician recommended sending in a report to the FDA. Here is a link for FDA report and also report adverse effects to RXing. I have submitted my forms and if you have had problems you should do the same. Here are some links to report to:

This one is to complete a form 3500 online,
https://www.accessdata.fda.gov/scripts/medwatch/medwatch-online.htm
Download a copy of this Voluntary Reporting Form FDA 3500 or the Consumer Voluntary Reporting Form FDA 3500B and either mail it or fax it to us at 1-800-FDA-0178. Forms are available at:
http://www.fda.gov/Safety/MedWatch/HowToReport/DownloadForms/default.htm
Another great link to report at
https://www.rxisk.org/Default.aspx

There is also a Yahoo Miralax group-that has a lot of people who have additional info on Miralax awareness. Just search Yahoo groups Miralax and it comes up.

Side Notes:
~she is still doing awesome! no aggression, rage, lethargy etc.
~no noticeable seizures.
~throws a tantrum here and there when she is not getting what she wants but, tantrums do not include the aggression (hair pulling, kicking, hitting etc.)
~putting more words together
~renal ultrasound came back with normal results-yay!